USA 2015 | 65 min. | Color
DVD NTSC | English | Not Rated
Duchenne muscular dystrophy is the number one disease in children, occurring in 1 in 3,500 male births around the world. While life expectancy varies in each case, those with the disease rarely live past their 20s.
After Dusty was diagnosed at the age of six with Duchenne, it awoke within his parents a devastating realization – their happy and playful child would suffer a long, progressively weakening condition for the rest of his life until his heart and breathing muscles cease to function. As a family, they united to learn as much as they could about the disease and to enjoy every moment in life, which eventually led Dusty to ask the question “how come there’s no old people with Duchenne?” This inspired Dusty’s mother, Catherine Jayasuriya, to form Coalition Duchenne in order to raise global awareness of and funding for research and a cure through musical events and a yearly expedition to Mt. Kinabalu on the Malaysian island of Borneo.
Dusty’s Trail: Summit of Borneo chronicles Dusty’s life and the remarkable journey his family, friends, and worldwide supporters take as they climb the 13,435-foot high mountain as a tribute to the boys who face the everyday challenges of living with Duchenne.